Today was my two week follow-up appointment my endocrinologist. You know, this was only the 2nd time we’d met and it was like we’d known each other forever. Her personality is so warm and she’s so easy to talk to…so much so that we got off topic and were showing each other videos of our kids. LOL That’s a good doctor-patient relationship!
Anyhow, this past Friday I had to have a blood test (nice bruise on my arm thanks to a badly trained phlebotomist) so we could check my levels with the current dosage of methimazole (thyroid medicine). My thyroid is in the normal range now! Yay! She’s taking me off the beta blocker (heart medicine) and cutting the methimazole dosage in half. This is great news!
Going forward, I have three options for long-term treatment:
- Medicine: anti-thyroid medicine to be exact. I’d just keep taking the methimazole. There is a slight chance that my thyroid could go into remission and I could get off the medicine all together, but that’s unlikely. No need to get my hopes up.
- Radioactive Iodine: oral treatment with a radioactive iodine pill that gradually destroys part of the thyroid. It can go as far as to destroy it…causing my thyroid to become hypoactive (slow) requiring different medicine. This is a very common form of treatment with a very common side effect. I expressed my concern about this treatment for two reasons:
- The treatment would involve me being unable to be in contact (touching, hugging etc.) Jacob or Joe for 3-7 days. NO way is Jacob going to go for that at his age. The doctor agreed (she has a one year old) and said we could always come back to this option later.
- Risk of cancer because of my BRCA1+ gene mutation. (Listen, you may poo poo this thought, and that is your right, but keep it to yourself, please. I have come too far to risk my health so I’m entertaining all possibilities and this is one that concerns me.) The doctor is not concerned that this will occur.
- Surgery: thyroidectomy – removal of some or all of the thyroid gland. The doctor feels that this is an extreme option given my current state. I agree.
I chose Option 1 (clearly the least bothersome option) for now. We’ll be checking my blood again in 6-8 weeks and then I’ll have a follow-up visit in 6 months. We think my symptoms are gone but can’t say for sure with regard to the exhaustion. I mean hey, I’m also a parent to a toddler! Though I think I’m good. Now if only my hair would grow back overnight. Where is my fairy godmother?
Patience…(If you have any to spare, please send some my way. thanks.)